Shawna Sabedra - Brothers on a Quest Inc.

For over six years, Shawna Sabedra has been an essential part of Brothers on a Quest Inc., bringing enthusiasm, creativity, and dedication to the organization. As Project Manager, she plays a pivotal role in planning and executing five annual fundraising events, managing social media, event graphics, and donation processes, all while ensuring that the organization continues to expand its reach and impact.

Brothers on a Quest is dedicated to finding treatments for Ataxia AOA2, a rare neurological disorder that affects coordination, balance, and movement. Raising awareness and funding for such a rare disease presents unique challenges, but thanks to Shawna’s expertise, the organization continues to grow, connect with new supporters, and create meaningful change. Her skills in event coordination, marketing, and community outreach have helped Brothers on a Quest thrive despite the difficulties of advocating for a lesser-known condition.

Beyond event management, Shawna has been instrumental in developing educational materials that provide families with clear, compassionate guidance. Understanding a rare disease can be overwhelming, but through her work, Shawna ensures that affected families have access to resources that explain the realities of Ataxia AOA2 in a way that is both informative and supportive. Her ability to present complex medical information in a kind and accessible manner has made a significant difference in the lives of patients and caregivers alike.

Shawna’s dedication extends far beyond her job title. Her passion for helping others, combined with her strong work ethic, has made her a cornerstone of Brothers on a Quest Inc. Her unwavering commitment to the mission of finding treatments and providing support to families affected by Ataxia AOA2 is truly inspiring.

The organization is incredibly grateful for Shawna’s contributions, and her work continues to leave a lasting impact on the community she serves.